Today, one of my new friends who also experiences IBS told me about a card that I could get from the CCFA (Crohn’s & Colitis Foundation of America) called the “Can’t Wait Card”. It’s a card that you can carry with you and if you find yourself in a situation where there is not a public restroom, you can use this card to gain access to any available bathroom, such as a staff toilet in a store, or an employee only restroom.
I had no idea one of these card even existed. So when my friend mentioned it to me, I was quickly on it. I can’t even tell you how many times I’ve been told… “I’m sorry miss, we don’t a public restroom.” Normally they can tell by the look on my face that I’m desperate. Some businesses have allowed me to use their facilities, but many haven’t. They’ve lost my future business.
I emailed CCFA this morning, they were quick to respond. I was very impressed; normally you’d have to wait forever to get a response. I wanted to share what they had to say…
“The… “Can’t Wait Card” which will gain you access to any public restroom is part of our membership program. Individual membership is a $30 annual fee which includes the card, a subscription to our bi-annual magazine Take Charge, a subscription to our bi-annual research news bulletin Under the Microscope, chapter newsletters, and discounts to CCFA events. If this poses a financial hardship, we can offer you a 1 year complimentary membership.”
You may be interested to know that CCFA has an exciting new education event. Our new patient education program is Understanding IBD: What Every Patient Needs to Know. This free event, open to all patients, family members, caregivers, and community members is hosted by the Crohn’s & Colitis Foundation and will be led by local physician experts.
Our experts in patient care and research will provide an in-depth overview of IBD, including:
• Guidance on how to recognize symptoms
• How to manage your disease
• Current therapies and emerging research
• Disease and treatment-related side effects
• Emotional wellness and resources
• Question-and-answer session
For more information on a local program in your area, please visit our website http://www.ccfa.org/info/understanding
To become a CCFA member, call 800.932.2423.
I had no clue there was such a care and I’ve done extensive research, so I wanted to share it with all of you so you to are now aware and can get your own card.
Due to my financial situation and my inability to work at this time, I’m not able to afford to send them their $30.00 membership fees until my disability is reinstated or my social security is approved… so I had to let them know that this posed a hardship…not an easy thing to admit to anyone. I have such a hard time asking for help (something I need to work on). I hate not having the money I use to have, or not being able to afford basic necessities or things that would help me deal with my illness a little easier…. But I’m learning to do what I can with the means that I have…
So if I don’t get approved for the hardship “Charity Care” membership, I’ve decided that I would have to continue doing what I have been doing… Closely monitoring where I go, map out my route… not eat until I get home, bulk up on the Imodium, etc… Either that… or come up with my own card with a sweet description as shown below:
“If you were presented this card….
The person standing before you is about to explode…
And I do mean EXPLODE…KABOOM!
You have two choices… run for cover,
Or escort them to your nearest restroom…
Thank you for your assistance in keeping our world a happier clean place.”
Without humor… what do we have left…? I’ll let you know if I get one of those special cards…or if I’ve made my own…LOL. Until the next time….
~Peace, Love & Happy Moments ~
Filed under: accident, Autoimmune Diseases, CCFA, Charity Care, Chronic Illness, Crohn's Disease, Digestive Health, feelings, Financial hardship for people with Crohn's, IBS, true story, Uncategorized | Tagged: Advocacy for People with Crohn's and IBS | 2 Comments »